Summary: Addiction treatment is really like a lifelong journey from a state of physical, emotional, social, psychological, and spiritual distress and dysfunction to a state of ongoing healing, growth, personal awareness, and overall wellbeing.
Key Points:
- A helpful way to understand what addiction treatment is really like is to reframe it as a recovery journey.
- The journey is different for each person, but there are challenges unique to the recovery experience where people in treatment find common ground and shared experiences.
- A comprehensive report published in 2022 gathered first-hand accounts from individuals on the recovery journey to help others understand what addiction treatment is really like.
What People Who’ve Been There Say About the Recovery Journey
The first two questions people ask when they embark on their recovery journey are often these:
What have I signed up for? What is addiction treatment really like?
A new publication from the non-profit group The Addiction Policy Forum (APF) provides an excellent answer to this question, and offers valuable insight on the treatment and recovery process, soup to nuts, starting with initiation of substance use and ending with the ongoing, post-treatment care.
In this article, we’ll share the key findings of that study, and include five key recommendations that we can implement, moving forward, to better support people with SUD, a.k.a. addiction.
The Recovery Experience: The Life History of a Person With Addiction
The study itself is called “Patient Journey Map: Substance Use Disorder Treatment and Recovery Experiences.” Here’s how the authors and researchers describe the project:
“Addiction Policy Forum’s (APF) Patient Journey Map was developed through the input of patients in treatment and recovery from substance use disorder (SUD). The map underscores the obstacles and positive points patients encounter across seven distinct phases, from treatment to finding long-term, stable recovery.”
We’ll describe the study now, starting with its participants.
Participants:
60 residents of U.S. or Canada. Gender: 55% female, 45% male. Age: 18-29: 15%, 30-44: 40%, 45-49: 35%, 60+: 10%. Ethnicity: Non-Hispanic White: 60%, Hispanic/Latin: 17%, Black or African American: 10%, Native American/Alaskan Native: 3%, Asian or Asian-American: 3%, Multiracial: 7%, SUD status: Single substance: 72%, Polysubstance: 28%, Alcohol use disorder (AUD): 32%, Opioid use disorder (OUD): 22%, Stimulant use disorder: 14%, Marijuana use disorder: 3%.
Next, an explanation of the study design.
Study Design:
The APF collected data between August 12th and December 12th, 2021.
The interviews were conducted by trained staff who were themselves in recovery from a substance use disorder. The interviews were Life Course History interviews, based on life course theory. This theory defines the life course of an individual as a “a sequence of socially defined events and roles that the individual enacts over time.” Life Course History interviews allow participants “to provide a subjective account of their life over a certain period of time, described in their own words, across their own personal timelines.”
This qualitative approach to interviewing allowed researchers to create a map that demonstrates “how complex interactions over the course of an individual’s life contribute to the onset, progression, and treatment of a SUD and the elements of long-term recovery.”
In other words, these interviews create a framework for an individual to tell their own life story, identify key moments, and offer their insight on how specific events led them to where they were at the time of the interview.
Life Course History interviews include questions on the following topics:
- Substance use
- Trauma
- Adverse childhood experiences
- Treatment experiences
- Facilitators to seeking treatment and recovery
- Barriers to seeking treatment and recovery
- Other information related to lived experience with addiction and recovery
- Open questions to increase engagement
The Life Course History interviews were qualitative, which means, essentially, they revolved around things that can’t be described by numbers or by counting, but rather focus on the quality – i.e. the subjective experience or feeling – of an event, rather than a specific numerical value, or quantity.
Metrics and Assessments Completed by Participants
- Severity of SUD:
- Physical, Psychological, Social and Emotional Consequences of SUD:
- Early/Childhood Trauma:
- Biological, psychological, and social Needs (biopsychosocial):
That’s the relevant information on the participants and the way the ADF conducted the study.
Now let’s take a look at the results.
What’s it Really Like? Challenges, Successes, Outcomes
After reviewing the extensive life history narratives collected during the first phase of their work, the research team defined seven core components of addiction recovery, i.e. the recovery journey, and formulated a Patient Course Map. We’ll report on all seven phases of the map, with details that will benefit anyone who wants to know what addiction treatment is really like.
This map can help people thinking about committing to treatment, people already in treatment, as well as friends and family of anyone thinking about/currently in treatment or on their own recovery journey.
Ready?
There’s a significant amount of information to process, here, but we promise: knowing all this information is helpful on a variety of levels. The most important, though, is to help individuals answer the question we pose above:
What have I signed up for?
Or:
What is addiction treatment really like?
Here’s the map.
The Patient Course Map
Onset and Progression
This part of the journey map examines the age of onset, substances used, risk factors present, and various consequences of SUD among study participants.
Age at Initiation of Substance Use
- Youngest: 5
- Oldest: 19
- Average: 14
Substances Used
- Opioids: 22%
- Alcohol: 32%
- Stimulants: 15%
- Marijuana: 3%
- Polysubstance use: 98%
- Polysubstance combinations:
- Opioid/stimulant: 35%
- Alcohol/stimulant: 24%
- Alcohol/opioid: 12%
- Marijuana/alcohol/stimulant: 12%
- Alcohol/sedative: 6%
- Marijuana/sedative: 6%
Risk Factors Present
- Family History of SUD: 85%
- Childhood Trauma: 90%
- Average ACE score: 4.3
- ACE score of 5 or higher: 47%
Types of ACEs:
- 83% experienced household dysfunction
- 62% reported addiction in household
- 55% reported mental health disorder in household
- 55% reported divorce
- 22% had an incarcerated parent
- 17% experience domestic violence
- 78% experienced emotional or sexual abuse
- 58% reported verbal abuse
- 48% reported physical abuse
- 40% reported sexual abuse
Consequences of SUD
- 98% reported damaged personal relationships
- 93% reported financial problems
- 92% reported personality changes
- 78% hospitalized for SUD-related reasons:
- Injury: 32%
- Infection: 18%
- Overdose: 17%
- Suicide attempt: 13%
- Car accident: 12%
- Sexual assault: 7%
- Detox or withdrawal: 7%
- 70% involved in criminal justice system:
- Arrested: 70%
- Probation: 63%
- Jail: 63%
- Diversion program: 35%
- Juvenile court: 23%
- Prison: 22%
What we see here is that people on the recovery journey show both wide variation and significant similarities. For instance, almost every participant reported experiencing trauma during childhood, another family member with addiction, and significant disruption and damage to the most important relationships in their lives.
These facts go a long way to explaining the deep fellowship/camaraderie people in recovery feel with their recovery peers. Not only do they have childhood experiences that overlap, they also developed similar responses to those experiences.
Now we’ll share what people said about why they decided to commit to treatment, which the study authors call trigger events.
Trigger Events
This segment of the report detailed exactly what led to the moment they realized they needed to chage their lives by committing themselves to recovery. Participants identified the most common three things that cause them to take the first step on the recovery journey: direct requests/demands from family and/or loved ones, feeling exhausted by ongoing addiction, and referrals/direction from the judicial system.
Here’s what people said about feeling exhausted by addiction:
“I’m sick and tired of being sick and tired.”
- 87% reported being tired of addiction and wanting change caused them to seek treatment
- 35% reported health reasons
- 23% reported pressure from loved ones
- 22% reported concerns around parenting and custody of children
- 20% reported referrals from criminal justice circumstances
Requests and demands – i.e. pressure – from family can come in many forms. From offhand comments like, “there are other ways to spend your time, ya know,” to unflinching, honest wake-up calls. One parent reported this:
“My youngest child walked out, was embarrassed, couldn’t bring her friends home, and chose on her own to go into foster care.”
That caused them to seek treatment when nothing else had.
Finding Help
This component of the report details the experiences patients faced after deciding they wanted to make a change and beginning a formal treatment program. This is the part of the journey where people experience the most significant problems.
Here’s what they reported about the experience of seeking support/finding help:
Barriers and Difficulties
- Stigma: 32%
- Self-stigma: 18%
- Public stigma: 10%
- Stigma related to medication-assisted treatment (MAT): 7%
- Stigma from providers: 3%
- Complexity of the system: 25%
- Wait times: 20%
- Cost: 8%
- Payer policies: 7%
- Transportation: 5%
Significant barriers most people had in common were labeled as pain points. These included long waits for a spot in their treatment center of choice, not finding a place they wanted to go, symptoms of withdrawal during this phase, lack of financial resources, and family/friends who, for whatever reason, didn’t support their decision to seek treatment. Positive components of this part of the recovery journey included supportive mental health professionals, supportive family and friends, and meeting recovery peers.
Next, we’ll report on the experiences people had at the beginning of their recovery journey, after beginning a formal treatment program.
Initiation of Care
This component of the report addressed evaluation, intake, and initiation of professional care. Common negative aspects of this phase include personal fear, managing stigma/fear of stigma, and learning about the presence of co-occurring mental health disorders in need of treatment. Positive components of this phase were identified as connecting with others in recovery and meeting motivated, compassionate, supportive addiction and mental health counselors.
Challenges
- Fear: 15%
- Repetitive assessments: 13%
- Participants report that constantly repeating their story – including the rock bottom part – was challenging. One participant said this was “the roughest point of the assessments.”
- Admitting the need for treatment: 13%
- Shame: 13%
- Waiting for treatment: 10%
- Withdrawal: 8%
Co-Occurring Disorders
- Depression: 37%
- Generalized anxiety disorder: 32%
- Bipolar disorder: 15%
- Post-traumatic stress disorder (PTSD): 15%
- Attention-deficit hyperactivity disorder: 12%
- Obsessive-compulsive disorder, borderline personality disorder panic disorder, social anxiety disorder, traumatic brain injury, substance-induced psychotic disorder, adjustment disorder: <5%
Participant views on intake assessment yielded a surprising result from this section of the report. Many treatment providers don’t realize the personal pain a person in treatment experiences every time they recount their substance use history. They question the need to re-tell the story so often, and offer the opinion that providers can record and communicate these stories to one another, without requiring them – the person in treatment – to tell their story over and over and over and over and over.
Treatment and Recovery
This component of the report assessed the types of treatment each participant utilized early in recovery and throughout their program. One promising takeaway is that most participants looked at earlier treatment attempts as important parts of their current successful treatment, rather than failure that set them back.
Overall, patients participated in four types of treatment each.
Treatment Services Accessed
- Support groups: 88%
- Mental health treatment: 57%
- Outpatient/intensive outpatient programs: 52%
- Residential programs: 37%
- Aftercare/ongoing care: 30%
- Medication: 28%
- Among these:
- 52% used buprenorphine treatment
- 48% used Naltrexone treatment
- 33% used methadone treatment
- Sober living homes: 22%
- Faith-based programs: 12%
- Among these:
Positive Aspects of Treatment
- Peer social connections
- Helpful clinicians
- Practical recovery skills and tools
- Education on the science of addiction and recovery
- Counselors and peer recovery coaches/specialists
Painful Aspects of Treatment
- The hard work of total self-honesty
- Working through shame and self-stigma
- Letting go of old friends and social networks connected to substance use
- Transportation
- Unhelpful home or work environment
Here’s an excerpt that really hit home with us:
“[I learned] that I’m not the gangster or the bad guy I’ve been perceived as my whole life. I’m really a good guy. I really love people. Helping people that’s [now] my biggest thing. Getting to know myself, ditching a lot of my fears, having a stable environment and not being homeless…the main thing is getting to know myself and getting to know God.”
This resonates with us because it represents external and internal transformation. Certainly not everyone in treatment for SUD is an ex-gangster, but almost everyone in treatment for SUD repeats negative scripts about their character and personality to themselves all the time. This individual rewrote those scripts, empowered themselves to write their own, and realized the truth of their inner spirit. Note: spirituality – i.e. “getting to know God” – is not a requirement for successful recovery. However, we should recognize that for many people – including this individual – reconnecting or connecting to spirituality promoted successful recovery.
Now we’ll report the various changes in daily habits and lifestyle people made while in treatment.
Lifestyle Changes
This component of the report assessed the adjustments and changes to their day-to-day lives that contributed to a successful experience. People said adjusting daily habits were pivotal in meeting their recovery goals. Some adjustments were no problem. People reported the most positive adjustments revolved around building new groups of friends, getting back to or starting daily exercise and healthy activity, learning new skills, and trying new things.
Lifestyle Changes During Treatment and Recovery
- Totally changed friend group: 40%
- Let go of specific people: 37%
- Stopped going to specific places: 28%
- Got involved in support groups: 28%
- Started new hobbies: 17%
- Moved: 17%
- Created a stable routine: 13%
- Exercise: 12%
- Healthy eating: 8%
- Spirituality: 5%
- Sleep hygiene: 5%
Positives Related to Lifestyle Changes
- New friendships
- Feeling happiness again
- Feeling present and alive again
- Rejoining/reuniting with family, especially children
- Feeling physically healthy
Negatives/Challenges of Lifestyle Changes
- Making amends
- Realizing triggers are everywhere
- Stigma against MAT
- Insomnia
- Sadness/depression
An important takeaway from this section of the study was the observation from participants that implementing lifestyle changes during treatment, or concurrently with treatment, was more effective than attempting to implement them after formal treatment. Overall, the adjustment people said matter most was this:
Building a social network filled with people either in recovery or who supported and understood the recovery lifestyle.
Now we’ll move on to the final section of the patient journey map, called ongoing support. This phase is also commonly called aftercare.
Ongoing Support
This component of the report assessed the types of support participants use to promote and sustain recovery when their official treatment ends and they step down through levels of care of move toward fully independent living. The report shows most people used three types of aftercare support upon finishing their program.
Services/Supports Utilized After Treatment
- Support groups like Alcoholics Anonymous (AA) or Narcotics Anonymous (NA): 65%
- Family and Friends: 55%
- Volunteer work: 38%
- Spirituality: 32%
- Mental health therapy/counseling: 23%
- Exercise: 13%
- New hobbies: 13%
- Supporting others with SUD: 13%
Professional/Formal Support
- 58% reported utilizing specialized services:
- Peer-recovery sponsor: 42%
- Counselor: 27%
- Psychiatrist: 15%
- Physician: 13%
- Recovery coach: 5%
The participants who self-identified as in recovery reported the three best parts:
- Return of physical health and emotional balance.
- A feeling of having done something big, something important, and something that changed their lives for the better.
- Healing relationships harmed by their addiction.
Participants with children reported that restoring those relationships – healing, making amends, fixing old patterns – were the most rewarding, consequential, and impactful outcomes of their recovery journey.
How This Information Helps Us Help Our Patients
The conclusion of the report focused on practical steps policymakers and treatment professionals can take – in response to the information above – to improve the recovery journey for people in addiction treatment.
How Can We Improve? Five Things People in Recovery Need Us To Do
1. Reduce barriers to care:
Any way we can reduce cost, minimize bureaucracy, and help individuals seek and commit to treatment will improve the overall experience.
2. Improve provider awareness of stigma.
People who encounter stigma associated with addiction treatment are less likely to enter treatment and more likely to continue substance use than people who do not encounter stigma. Participants report stigma among healthcare providers, most often related to the use of medication for opioid use disorder (MOUD). While there are treatment centers that require tapering off MOUDs after withdrawal, it’s possible to take this position without stigmatizing people – especially people in treatment – who want long-term support with MOUDs.Improve the evaluation and diagnostic process:
Many individuals report the repetitive nature of the assessment and review process is triggering, uncomfortable, and traumatic. Participants report feeling interrogated, and question the necessity of frequent, multiple interviews about the SUD history. We recognize that gathering up-to-date information is essential for gauging treatment progress. At the same time, we need to listen to patients on this point: we may be unintentionally causing harm, in an effort to reduce harm.
4. Tailored treatment programs and having an actual case manager matter:
Due to the complex nature of recovery, and the fact that on average, people in recovery utilize multiple modes of support, it’s incumbent on treatment professionals to dedicate staff the manage the details of the process. People in recovery need to focus on getting well, while a case manager who monitors a custom treatment plan can connect the administrative dots and ensure and seamless continuum of care.
5. Comprehensive assessments for early trauma:
90% of participants in the study reported childhood trauma, a.k.a. adverse childhood experiences. Screening for ACEs in the pediatric or primary care setting can identify risk of SUD early, and implement evidence-based preventions strategies as soon as they identify the presence of early trauma.
One last thing.
What we value most about this study is they listened. That’s critical: as treatment professionals, we know we do our best work when we listen with an open mind and treat people with compassion. We lead with our hearts, but we rely on evidence-based treatment: that’s the most effective approach to supporting people with SUD – and the one we use every day.


